Down Syndrome Association of Middle Tennessee
P.O. Box 1182
Mt. Juliet TN 37121
Mission Statement

The Mission of the Down Syndrome Association of Middle Tennessee is:

To ensure individuals with Down syndrome are valued for their extraordinary gifts and contributions, empowering them to pursue meaningful, included lives by providing education, advocacy, support and community for people with Down syndrome and their families, and serving as a resource for educators, healthcare professionals, employers and the entire Middle Tennessee community.


Leadership
CEO/Executive Director Mrs. Alecia Talbott
Board Chair Mr. Will Vaughn
Board Chair Company Affiliation Cort
History & Background
Year of Incorporation 1995
Organization's type of tax exempt status 501-C3
Financial Summary
Graph: Expense Breakdown Graph - All Years
 
 
Projected Expenses $448,890.00
Projected Annual Revenue $519,200.00 (2018)
Statements
Mission

The Mission of the Down Syndrome Association of Middle Tennessee is:

To ensure individuals with Down syndrome are valued for their extraordinary gifts and contributions, empowering them to pursue meaningful, included lives by providing education, advocacy, support and community for people with Down syndrome and their families, and serving as a resource for educators, healthcare professionals, employers and the entire Middle Tennessee community.


Background
DSAMT was formed in 1995 by a group of parents with children with Down syndrome.  The organization has grown from a network of about 25 families in 1998, to a membership of more than 5,000 community members today.
 
DSAMT is a non-profit 501(c)3 tax exempt organization, led by a fifteen-member Board of Directors and the Executive Director.
 
DSAMT is affiliated with the National Down Syndrome Society, the National Down Syndrome Congress ad Global Down Syndrome. These national organizations provide DSAMT with current up-to-date information on research, advocacy and policy issues concerning individuals with Down syndrome. DSAMT works closely with the Disability Coalition of TN, The Arc of Tennessee, GiGi's Playhouse Nashville, the Tennessee Council on Developmental Disabilities and other disability organizations locally and nationally. DSAMT has become the leading resource for parents in Middle Tennessee for accurate and up-to-date information on Down syndrome issues.
 
DSAMT envisions a world in which all people with Down syndrome have the opportunity to realize their life aspirations. To that end, we provide:

1. First Call Program – helping families with a new diagnosis, those new to the area and with secondary diagnoses;
2. School Partnership Program – supporting educators with training and resources;
3. Medial Partnership Program – supporting the medical community with training and resources;
4. Employer Partnership Program – supporting the business community to facilitate competitive employment opportunities;
5. Advocacy – supporting individuals with DS and their families to advocate for inclusion and acceptance; educating the community on key issues and working with legislators;
6. Education – providing caregivers with training and resources;
7. Community – connecting families to our others in our community, resources, activities and support; and
8. Inclusive Programs – providing inclusive, educational, employment and social opportunities.
Impact
 DSAMT has recently launched its new website and resource center, providing families with the most up-to-date, accurate and comprehensive information available for Middle Tn on Down syndrome.  Additionally, it launched an outreach effort specifically to spanish-speaking families, which includes informational materials for newly diagnosed families, a support group and parent mentors, as well as a dedicated phone line to connect directly to other spanish-speaking mentors.  It also launched its first employment initiative, hiring four adults with Down syndrome!  In 2018, DSAMT has advocated for successful passage of the Down Syndrome Information Act in the TN General Assembly, which requires the TN Department of Health to make available on its website up-to-date information on Down syndrome and the TN support groups.  This legislation will have a tremendous impact on families who receive the diagnosis state-wide.
 
Current goals include 1) expansion of our employment program "Pepe's with a Purpose" to employ more individuals with  DS;  2) raise funds to purchase property to be used for a Down syndrome enrichment center and office; 3) outreach to medical professionals in all 41 counties so that every OBGYN and Pediatrician has knowledge of the new DS Information Act and access to DSAMT New & Expecting Parent Guide; 4) expansion of our parent support groups; 5) fundraising to support an educator conference to give them the tools needed to maximize the progress of exceptional learners in the classroom.
 
Needs
DSAMT's most pressing need is to maintain funding to support ongoing programs, and to increase funding in order to expand opportunities for direct service in the community.
 
Please visit our website for more information about how you can help.  https://www.somethingextra.org/ways-to-help/
Other ways to donate, support, or volunteer Current opportunities for support, donation, sponsorship, in-kind gifts, purchases and volunteer are located on our website at https://www.somethingextra.org/ways-to-help/.  Checks are accepted at DSAMT, PO Box 1182, Mt. Juliet, TN  37121.
Service Categories
Primary Organization Category Human Services / Developmentally Disabled Services/Centers
Areas of Service
Areas Served
TN - Davidson
TN - Williamson
TN - Rutherford
TN - Wilson
TN - Sumner
TN - Bedford
TN - Cannon
TN - Cheatham
TN - Clay
TN - Coffee
TN - Cumberland
TN - Davidson
TN - Dekalb
TN - Dickson
TN - Fentress
TN - Franklin
TN - Giles
TN - Hickman
TN - Houston
TN - Humphreys
TN - Lawrence
TN - Lewis
TN - Lincoln
TN - Macon
TN - Maury
TN - Montgomery
TN - Moore
TN - Overton
TN - Perry
TN - Pickett
TN - Putnam
TN - Robertson
TN - Rutherford
TN - Smith
TN - Stewart
TN - Sumner
TN - Trousdale
TN - Van Buren
TN - Warren
TN - Wayne
TN - White
TN - Williamson
TN - Wilson
While based in Davidson county, the Down Syndrome Association of Middle Tennessee serves all forty one counties that make up the Middle Tennessee region.
CEO Statement
The Down Syndrome Association of Middle Tennessee is unique. Our staff is committed to being available at any time to speak with educators, parents and families to discuss life issues and find resolutions. Our member families act as ambassadors in the community, supporting one another and advocating for their loved ones with Down syndrome.
 
Down syndrome is considered a disability by many, but at DSAMT we  focus on the strengths and abilities of all people. We know that people with Down syndrome are not defined by the number of chromosomes in their DNA; they are individuals, each with unique talents, interests, and capabilities.
 
DSAMT continues to further faith and confidence in our families and members by offering creative opportunities and programs for them to explore. We hope to reach all Middle Tennesseans through our advocacy efforts and that our community will continue to view people with Down syndrome as active and valuable citizens.
Programs
Description First Call provides new and expectant parents with a trained parent mentor, information, gifts and baby showers.  It supports families upon receipt of secondary diagnoses, during long hospital stays and times of crisis. Through this program, it also provides materials to local providers and hospitals.
Budget 17000
Category
Population Served Adults, ,
Description DSAMT provides support groups  and family activities for new parents and those sharing the experience of Down syndrome. Group family counseling with a professional facilitator is also available as needed. DSAMT also provides regular support groups including D.A.D.S. (Dads Appreciating Down Syndrome), community outreach groups, and Moms Night Out meetings. It also provides educational workshops and bi-annual educational conferences.
Budget 75000
Category
Population Served , ,
Description
DSAMT provides inclusive, age-appropriate recreational, educational and social opportunities for individuals with Down syndrome.  These include but are not limited to:  Creative Arts Camp, iCan Shine Bike Camp, Easter Seals Camp, Extraordinary Evening Dance for teens & adults, Once Upon a Friendship Dance for middle-school aged children, employment opportunities, Circle of Friends monthly social program, Next Chapter Book Club weekly reading program, Extraordinary Fun with Friends activities throughout the community and scholarship opportunities.
 
Budget 31000
Category
Population Served , ,
Description
DSAMT supports educators, medical professionals and employers with training and resources to meet the needs of individuals with Down syndrome in the classroom, as patients and in competitive work placements.
Budget 35000
Category
Population Served , ,
Description
DSAMT supports individuals with DS and their families to advocate for inclusion and acceptance, educating the community on key issues.  It works with local, state and national law makers on key legislation that benefits those with disabilities.  It provides advocacy support and training to parents with school-aged children.
 


 
Budget 24000
Category
Population Served , ,
CEO Comments Regarding our programs, our biggest challenge today remains outreach to our outlying communities. In order to provide programs in these areas requires additional funding.
Board Chair
Board Chair Mr. Will Vaughn
Company Affiliation Cort
Term Aug 2015 to July 2019
Email vandywill07@gmail.com
Board Members
NameAffiliationStatus
Jim Anisi Voting
Anne-Marie Clark Voting
Rachel Goode Vanderbilt University Medical CenterVoting
Christine Gupton Williamson Co SchoolsVoting
Faithe Logan Voting
Craig Maynard Voting
Travis Pelfrey HCAVoting
Joseph Rinaldo Comfort SupplyVoting
Todd Staley State of Tennessee – Dept. of Financial InstitutionVoting
Rebecca Tinsley Turner ConstructionVoting
Duane Willis Morgan & Akins, PLLCVoting
Courtney Wright Vanderbilt UniversityVoting
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 12
Hispanic/Latino 0
Native American/American Indian 0
Other 0
Board Demographics - Gender
Male 7
Female 5
Unspecified 0
Governance
Board Term Lengths 2
Board Term Limits 2
Board Meeting Attendance % 85%
Does the organization have written Board Selection Criteria? Under Development
Does the organization have a written Conflict of Interest Policy? Yes
Percentage of Board Members making Monetary Contributions 100%
Percentage of Board Members making In-Kind Contributions 100%
Does the Board include Client Representation? Yes
Number of Full Board Meetings Annually 6
Board CoChair
Board CoChair Mrs. Faithe Logan
Term Jan 2016 to Dec 2018
Standing Committees
Advisory Board
Board Development
Community Outreach / Community Relations
Development / Fund Raising
Education
Parents
Program
Special Events
Strategic Planning
Risk Management Provisions
Employee Benefits Liability
General Property Coverage & Professional Liability
Special Event Liability
Workers Compensation and Employers' Liability
Executive Director/CEO
Executive Director Mrs. Alecia Talbott
Term Start Jan 2013
Email alecia@somethingextra.org
Experience

Alecia became the the executive director of DSAMT in 2012, after spending several years as an active member and volunteer in our organization and in the disability community. She received her BA & MA from Western Kentucky University, taught at Nashville State and Volunteer State Community Colleges, directed marketing at Passport Health Communications, Inc. and was a freelance marketing professional before joining DSAMT.

Ms. Talbott is a strong advocate for inclusion and acceptance for those with Down syndrome and other disabilities in the community and schools, having completed the Vanderbilt Volunteer Advocacy Program, Wrightslaw training and other advocacy trainings. Her passion lies in helping those with Down syndrome show the world that those with “something extra” bring extraordinary gifts to our communities that should be recognized and valued.

She also serves on the Disability Coalition for Education, Vanderbilt's Disability Pathfinder Advisory Committee, and the Tennessee Disability Coalition Board of Directors. In 2011 she was named Best Buddies TN Champion of the Year and in 2016 received the Nashville Business Journal’s Woman of the Year Award. She is also an NDSS DS-Ambassador.
She is an NDSS Ambassador and NDSC Advocate.

Staff
Full Time Staff 3
Part Time Staff 0
Volunteers 150
Contractors 3
Retention Rate 67%
Affiliations
AffiliationYear
Center for Nonprofit Management Excellence Network2000
Community Resource Center - Nashville2003
National Down Syndrome Society2000
National Down Syndrome Congress2002
Alliance on Disability Policy of Tennessee2007
Vanderbilt University Medical Center2013
Belmont University2013
Lebanon/Wilson County Chamber of Commerce2016
The ARC of Tennessee2013
Awards
Award/RecognitionOrganizationYear
Federal Home Loan Bank of Ohio Federal Home Loan Bank2005
Community Partner RecognitionVanderbilt Kennedy Center2005
National Conference RecognitionNational Down Syndrome Society2003
Nashville Habitat for HumanityNashville Habitat for Humanity2005
Community PartnerFrist Center for the Arts2016
 
 
Fiscal Year
Fiscal Year Start Jan 01 2018
Fiscal Year End Dec 31 2018
Projected Revenue $519,200.00
Projected Expenses $448,890.00
Endowment Spending Policy N/A
Endowment Spending Percentage (if selected) 0%
Detailed Financials
Expense Allocation
Fiscal Year201620152014
Program Expense$185,885$180,059$143,565
Administration Expense$13,603$35,397$32,117
Fundraising Expense$180,458$21,384$16,830
Payments to Affiliates--$0$0
Total Revenue/Total Expenses0.981.171.19
Program Expense/Total Expenses49%76%75%
Fundraising Expense/Contributed Revenue59%8%8%
Assets and Liabilities
Fiscal Year201620152014
Total Assets$379,300$409,441$359,387
Current Assets$351,676$403,856$358,970
Long-Term Liabilities$0$0$0
Current Liabilities$14,942$16,106$7,487
Total Net Assets$364,358$393,335$351,900
Short Term Solvency
Fiscal Year201620152014
Current Ratio: Current Assets/Current Liabilities23.5425.0747.95
Long Term Solvency
Fiscal Year201620152014
Long-Term Liabilities/Total Assets0%0%0%
Top Funding Sources
Fiscal Year201620152014
Top Funding Source & Dollar AmountContributions, Gifts, and Grants $254,390Contributions, Gifts & Grants $248,127Fundraising Events $137,369
Second Highest Funding Source & Dollar AmountNoncash Contributions $53,438Foundations and Corporations $11,500Foundations and Corporations $54,000
Third Highest Funding Source & Dollar AmountContributions, Gifts, and Grants $52,721Fundraising Events $8,966Program Services $27,688
Capital Campaign
Is the organization currently conducting a Capital Campaign for an endowment or the purchase of a major asset? Yes
Campaign Purpose To purchase property and building space for Down syndrome enrichment center and DSAMT offices.
Capital Campaign Goal $1,000,000.00
Capital Campaign Anticipated in Next 5 Years? Yes
State Charitable Solicitations Permit
TN Charitable Solicitations Registration Yes - Expires June 2018
GivingMatters.com Financial Comments
Financial figures taken from the 990.
990 prepared by Atnip CPA, LLC.
Comments provided by Nicole Rose 04/04/2018. 
Nonprofit Down Syndrome Association of Middle Tennessee
Address P.O. Box 1182
Mt. Juliet, TN 37121
Primary Phone (615) 386-9002
CEO/Executive Director Mrs. Alecia Talbott
Board Chair Mr. Will Vaughn
Board Chair Company Affiliation Cort
Year of Incorporation 1995

Related Information

Public Health

The dramatic achievements of public health in the 20th century have improved our quality of life in a myriad of ways, including an increase in life expectancy, worldwide reduction of infant and child mortality rates, and the elimination or reduction of many communicable diseases. In Middle Tennessee, improvements in preventive medicine and advanced medical technology have resulted in increased life expectancy and improved health for many residents. However, significant health disparities exist in our region, resulting in poor health status often related to economic status, race, and/or gender.