Down Syndrome Association of Middle Tennessee
P.O. Box 1182
Mt. Juliet TN 37121
Mission Statement

The Mission of the Down Syndrome Association of Middle Tennessee is:

To ensure individuals with Down syndrome are valued for their extraordinary gifts and contributions, empowering them to pursue meaningful, included lives by providing education, advocacy, support and community for people with Down syndrome and their families, and serving as a resource for educators, healthcare professionals, employers and the entire Middle Tennessee community.

CEO/Executive Director Mrs. Alecia Talbott
Board Chair Mr. Will Vaughn
Board Chair Company Affiliation Cort
History & Background
Year of Incorporation 1995
Organization's type of tax exempt status 501-C3
Financial Summary
Graph: Expense Breakdown Graph - All Years
Projected Expenses $349,525.00
Projected Annual Revenue $448,200.00 (2017)

The Mission of the Down Syndrome Association of Middle Tennessee is:

To ensure individuals with Down syndrome are valued for their extraordinary gifts and contributions, empowering them to pursue meaningful, included lives by providing education, advocacy, support and community for people with Down syndrome and their families, and serving as a resource for educators, healthcare professionals, employers and the entire Middle Tennessee community.

DSAMT was formed in 1995 by a group of parents with children with Down syndrome. DSAMT began as a volunteer supported organization to provide accurate information about Down syndrome and peer support to families in the Middle Tennessee region. In 1998, DSAMT opened an office and hired and Executive Director, Sheila Moore who worked with DSAMT until February of 2012.  In February of 2013, the organization hired Alecia Talbott as Executive Director.  The organization has grown from a network of about 25 families in 1998, to a membership of more than 4,000 family members, individuals with Down syndrome, professionals and community members today.
DSAMT is a non-profit 501(c)3 tax exempt organization, led by a fifteen-member Board of Directors and the Executive Director. The E.D. manages the programs and day-to-day operations of the organization.
DSAMT is affiliated with the National Down Syndrome Society and the National Down Syndrome Congress. Both national organizations provide DSAMT with current up-to-date information on research, advocacy and policy issues concerning individuals with Down syndrome. DSAMT works closely with The Arc of Tennessee, the Tennessee Council on Developmental Disabilities and other disability organizations locally and nationally to provide support for individuals with Down syndrome. DSAMT has become the leading resource for parents in Middle Tennessee for accurate and up-to-date information on Down syndrome issues.
Down Syndrome, which usually occurs when an individual has a third copy of the 21st chromosome, is the most frequently occurring chromosomal condition, occurring once in every 691 live births. The extra genetic material can cause certain physical characteristics, low muscle tone, developmental and cognitive delays, heart defects, respiratory and hearing problems. While some medical issues can range from moderate to severe, modern medicine has rendered most of the medical conditions associated with Down syndrome treatable and most people with Down syndrome now live healthy lives.
There are more than 400,000 individuals living with Down syndrome in the United States today. Each of these unique individuals touches the lives of family members, educators, employers, health care professionals, peers and others. This network of people who are forever changed for the better by Down syndrome numbers in the millions.
The Down Syndrome Association of Middle Tennessee envisions a world in which all people with Down syndrome have the opportunity to realize their life aspirations. To that end, we provide the following support to people in our community:
1. DSAMT provides up-to-date and accurate information on Down syndrome and disability issues through educational workshops, teacher trainings, public awareness campaigns, community events, and newsletters.
2. DSAMT holds a bi-annual statewide conference on Down syndrome.  We bring national experts on Down syndrome to Middle Tennessee to present cutting edge information to individuals with Down syndrome, their parents, caregivers, educators and disability professionals on a variety of issues including medical research, therapies, educational planning, estate planning, employment, and self-advocacy.
3. DSAMT provides enrichment activities for individuals with Down syndrome through summer camps, social groups and book club meetings.
4. When needed, DSAMT offers counseling support to parents in need of help when dealing with challenges that arise while raising a child with Down syndrome.  Led by a professional therapist, our group and individual counseling sessions are held in a safe, supportive and confidential environment.
5.  DSAMT provides support to families who have a member with Down syndrome through community events, social gatherings, and networking opportunities. Some programs include ongoing group meetings like D.A.D.S. (Dads Appreciating Down Syndrome), Community Outreach Groups, and quarterly Moms Night Out meetings. We also host family picnics, holiday parties, and the annual Buddy Walk, a celebration of individuals with Down syndrome held during National Down Syndrome Awareness Month, in October.
DSAMT's most pressing need is to maintain funding to support ongoing programs, and to increase funding in order to expand opportunities for direct service in the community.
Please visit our website for more information about how you can help.
Service Categories
Primary Organization Category Human Services / Developmentally Disabled Services/Centers
Areas of Service
Areas Served
TN - Davidson
TN - Williamson
TN - Rutherford
TN - Wilson
TN - Sumner
TN - Bedford
TN - Cannon
TN - Cheatham
TN - Clay
TN - Coffee
TN - Cumberland
TN - Davidson
TN - Dekalb
TN - Dickson
TN - Fentress
TN - Franklin
TN - Giles
TN - Hickman
TN - Houston
TN - Humphreys
TN - Lawrence
TN - Lewis
TN - Lincoln
TN - Macon
TN - Maury
TN - Montgomery
TN - Moore
TN - Overton
TN - Perry
TN - Pickett
TN - Putnam
TN - Robertson
TN - Rutherford
TN - Smith
TN - Stewart
TN - Sumner
TN - Trousdale
TN - Van Buren
TN - Warren
TN - Wayne
TN - White
TN - Williamson
TN - Wilson
While based in Davidson county, the Down Syndrome Association of Middle Tennessee serves all forty one counties that make up the Middle Tennessee region.
CEO Statement
The Down Syndrome Association of Middle Tennessee is unique. Our staff is committed to being available at any time to speak with educators, parents and families to discuss life issues and find resolutions. Our member families act as ambassadors in the community, supporting one another and advocating for their loved ones with Down syndrome.
Down syndrome is considered a disability by many, but at DSAMT we  focus on the strengths and abilities of all people. We know that people with Down syndrome are not defined by the number of chromosomes in their DNA; they are individuals, each with unique talents, interests, and capabilities.
DSAMT continues to further faith and confidence in our families and members by offering creative opportunities and programs for them to explore. We hope to reach all Middle Tennesseans through our advocacy efforts and that our community will continue to view people with Down syndrome as active and valuable citizens.
Description First Call provides new and expectant parents with a trained parent mentor, information, gifts and baby showers.  It supports families upon receipt of secondary diagnoses, during long hospital stays and times of crisis.
Budget 20000
Population Served Adults, ,
Description DSAMT provides support groups for new parents and those sharing the experience of Down syndrome. Group family counseling with a professional facilitator is also available as needed. DSAMT also provides regular support groups including D.A.D.S. (Dads Appreciating Down Syndrome), community outreach groups, and Moms Night Out meetings.
Budget 36000
Population Served , ,
DSAMT provides two weeks of Summer Arts Camps for kids, teens and adults with Down syndrome and other developmental or intellectual disabilities. Camp activities include visual arts, music, creative play and more. The day camp format allows for a safe and supportive environment in which campers can feel free to express themselves creatively.
In 2016, DSAMT received hosted the iCan Shine Bike Camp in Nashville.  The camp teaches individuals with Down syndrome and other disabilities how to ride a bike independently.  In its first year the bike camp worked with 25 children from DSAMT and other community organizations.  The 2010 camp worked with 20 children and more than 40 community volunteers. More than 75% of participants in the camp were able to learn to ride a two-wheeled bicycle, opening up a world of inclusive activity with their families, neighbors, siblings and peers. In 2016 the camp worked with 25 individuals with disabilities and more than 50 volunteers with great successs of children and adults learning to independently ride a bike. 
Budget 11500
Population Served , ,
Description DSAMT hosts a statewide conference every other year, bringing national and local experts on Down syndrome to Middle Tennessee to meet and share information with parents, educators and disability professionals. The conference focuses on topics such as medical research, education, legal issues, health, and long term supports. A self-advocates track for individuals with Down syndrome provides workshops on employment issues, healthy habits, self-determination and other important topics.
Budget 18000
Population Served , ,
DSAMT provides enrichment for individuals with Down syndrome through programs including Circle of Friends, a monthly social and recreational program for teens and adults with Down syndrome and Next Chapter Book Club, a weekly book club meeting.
For families, DSAMT hosts social gatherings including Family Picnics, Holiday Parties, Mom's Luncheons, and Grandparents events.
DSAMT provides advocacy through community awareness events including and the annual Buddy Walk, an all-day celebration of the abilities and accomplishments of individuals with Down syndrome. The day includes games and activities, a one-mile fun walk in honor of National Down Syndrome Awareness Month, and the presentation of the Mollie Gavigan award for service to the Down syndrome community.
In 2012 DSAMT will work with the Tennessee State Legislature to establish March 21 as Down Syndrome Awareness Day in Tennessee. The day will be celebrated with a "Down Syndrome Day on the Hill" in which voting age citizens with Down syndrome from across the state will visit their state representatives and senators at the capitol and meet the governor to advocate for themselves.
Budget 25000
Population Served , ,
CEO Comments Regarding our programs, our biggest challenge today remains outreach to our outlying communities. In order to provide programs in these areas requires additional funding.
Board Chair
Board Chair Mr. Will Vaughn
Company Affiliation Cort
Term Aug 2015 to July 2017
Board Members
Jim Anisi Voting
Anne-Marie Clark Voting
Amy Fuqua Voting
Felipe Garcia Voting
Craig Maynard Voting
Lisa Peek Voting
Travis Pelfrey HCAVoting
Rebecca Tinsley Turner ConstructionVoting
Gina Wilson WavesVoting
Courtney Wright Vanderbilt UniversityVoting
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 12
Hispanic/Latino 1
Native American/American Indian 0
Other 0
Board Demographics - Gender
Male 5
Female 8
Unspecified 0
Board Term Lengths 2
Board Term Limits 2
Board Meeting Attendance % 85%
Does the organization have written Board Selection Criteria? Under Development
Does the organization have a written Conflict of Interest Policy? Yes
Percentage of Board Members making Monetary Contributions 100%
Percentage of Board Members making In-Kind Contributions 100%
Does the Board include Client Representation? Yes
Number of Full Board Meetings Annually 6
Board CoChair
Board CoChair Mrs. Faithe Logan
Term Jan 2016 to Dec 2018
Standing Committees
Advisory Board
Board Development
Communications / Public Relations
Community Outreach / Community Relations
Development / Fund Raising
Special Events
Strategic Planning
Risk Management Provisions
Employee Benefits Liability
General Property Coverage & Professional Liability
Special Event Liability
Executive Director/CEO
Executive Director Mrs. Alecia Talbott
Term Start Jan 2013

Alecia became the the executive director of DSAMT in 2012, after spending several years as an active member and volunteer in our organization and in the disability community. She received her BA & MA from Western Kentucky University, taught at Nashville State and Volunteer State Community Colleges, directed marketing at Passport Health Communications, Inc. and was a freelance marketing professional before joining DSAMT.

Ms. Talbott is a strong advocate for inclusion and acceptance for those with Down syndrome and other disabilities in the community and schools, having completed the Vanderbilt Volunteer Advocacy Program, Wrightslaw training and other advocacy trainings. Her passion lies in helping those with Down syndrome show the world that those with “something extra” bring extraordinary gifts to our communities that should be recognized and valued.

She also serves on the Disability Coalition for Education, Vanderbilt's Disability Pathfinder Advisory Committee, and the Tennessee Disability Coalition Board of Directors. In 2011 she was named Best Buddies TN Champion of the Year and in 2016 received the Nashville Business Journal’s Woman of the Year Award.

Full Time Staff 3
Part Time Staff 0
Volunteers 150
Contractors 3
Retention Rate 0%
Center for Nonprofit Management Excellence Network2000
Community Resource Center - Nashville2003
National Down Syndrome Society2000
National Down Syndrome Congress2002
Alliance on Disability Policy of Tennessee2007
Federal Home Loan Bank of Ohio Federal Home Loan Bank2005
Community Partner RecognitionVanderbilt Kennedy Center2005
National Conference RecognitionNational Down Syndrome Society2003
Nashville Habitat for HumanityNashville Habitat for Humanity2005
Community PartnerFrist Center for the Arts2016
Fiscal Year
Fiscal Year Start Jan 01 2017
Fiscal Year End Dec 31 2017
Projected Revenue $448,200.00
Projected Expenses $349,525.00
Endowment Spending Policy N/A
Endowment Spending Percentage (if selected) 0%
Detailed Financials
Expense Allocation
Fiscal Year201520142013
Program Expense$180,059$143,565$105,691
Administration Expense$35,397$32,117$22,329
Fundraising Expense$21,384$16,830$7,363
Payments to Affiliates$0$0--
Total Revenue/Total Expenses1.171.191.52
Program Expense/Total Expenses76%75%78%
Fundraising Expense/Contributed Revenue8%8%4%
Assets and Liabilities
Fiscal Year201520142013
Total Assets$409,441$359,387$320,975
Current Assets$403,856$358,970$304,081
Long-Term Liabilities$0$0$0
Current Liabilities$16,106$7,487$6,323
Total Net Assets$393,335$351,900$314,652
Short Term Solvency
Fiscal Year201520142013
Current Ratio: Current Assets/Current Liabilities25.0747.9548.09
Long Term Solvency
Fiscal Year201520142013
Long-Term Liabilities/Total Assets0%0%0%
Top Funding Sources
Fiscal Year201520142013
Top Funding Source & Dollar AmountContributions, Gifts & Grants $248,127Fundraising Events $137,369 --
Second Highest Funding Source & Dollar AmountFoundations and Corporations $11,500Foundations and Corporations $54,000 --
Third Highest Funding Source & Dollar AmountFundraising Events $8,966Program Services $27,688 --
Capital Campaign
Is the organization currently conducting a Capital Campaign for an endowment or the purchase of a major asset? No
Capital Campaign Goal $0.00
Capital Campaign Anticipated in Next 5 Years? Yes
State Charitable Solicitations Permit
TN Charitable Solicitations Registration Yes - Expires June 2018 Financial Comments
Financial figures taken from the 990.
990 prepared by Atnip CPA, LLC.
Comments provided by Elizabeth Madsen 11/4/16
Nonprofit Down Syndrome Association of Middle Tennessee
Address P.O. Box 1182
Mt. Juliet, TN 37121
Primary Phone (615) 386-9002
CEO/Executive Director Mrs. Alecia Talbott
Board Chair Mr. Will Vaughn
Board Chair Company Affiliation Cort
Year of Incorporation 1995

Related Information

Public Health

The dramatic achievements of public health in the 20th century have improved our quality of life in a myriad of ways, including an increase in life expectancy, worldwide reduction of infant and child mortality rates, and the elimination or reduction of many communicable diseases. In Middle Tennessee, improvements in preventive medicine and advanced medical technology have resulted in increased life expectancy and improved health for many residents. However, significant health disparities exist in our region, resulting in poor health status often related to economic status, race, and/or gender.