Down Syndrome Association of Middle Tennessee
111 North Wilson Boulevard
Nashville TN 37205
Mission Statement
The Down Syndrome Association of Middle Tennessee's mission is to enhance the quality of life of individuals, throughout the lifespan, with Down syndrome by providing support, information, and education to those individuals, their families, and the communities that make up the Middle Tennessee region.  We are committed to being the leader in Tennessee in supporting and enhancing the quality of life, and realizing the potential of all people with Down syndrome.
Leadership
CEO/Executive Director
Board Chair Mr. Bob Brunner
Board Chair Company Affiliation The Medicines Company
History & Background
Year of Incorporation 1995
Organization's type of tax exempt status 501-C3
Financial Summary
 
 
Projected Expenses $250,000.00
Projected Annual Revenue $300,000.00 (2013)
Statements
Mission The Down Syndrome Association of Middle Tennessee's mission is to enhance the quality of life of individuals, throughout the lifespan, with Down syndrome by providing support, information, and education to those individuals, their families, and the communities that make up the Middle Tennessee region.  We are committed to being the leader in Tennessee in supporting and enhancing the quality of life, and realizing the potential of all people with Down syndrome.
Background
DSAMT was formed in 1995 by a group of parents with children with Down syndrome. DSAMT began as a volunteer supported organization to provide accurate information about Down syndrome and peer support to families in the Middle Tennessee region. In 1998, DSAMT opened an office and hired and Executive Director, Sheila Moore who worked with DSAMT until February of 2012.  In June of 2012, DSAMT hired a new Executive Director, Brad Goodin.  The organization has grown from a network of about 25 families in 1998, to a membership of more than 750 family members, individuals with Down syndrome and professionals today.
 
DSAMT is a non-profit 501(c)3 tax exempt organization, led by an eleven member Board of Directors and the Executive Director. The E.D. manages the programs and day-to-day operations of the organization.
 
DSAMT is affiliated with the National Down Syndrome Society and the National Down Syndrome Congress. Both national organizations provide DSAMT with current up-to-date information on research, advocacy and policy issues concerning individuals with Down syndrome. DSAMT works closely with The Arc of Tennessee, the Tennessee Council on Developmental Disabilities and other disability organizations locally and nationally to provide support for individuals with Down syndrome. DSAMT has become the leading resource for parents in Middle Tennessee for accurate and up-to-date information on Down syndrome issues.
Impact
Down Syndrome, which usually occurs when an individual has a third copy of the 21st chromosome, is the most frequently occurring chromosomal condition, occurring once in every 691 live births. The extra genetic material can cause certain physical characteristics, low muscle tone, developmental and cognitive delays, heart defects, respiratory and hearing problems. While some medical issues can range from moderate to severe, modern medicine has rendered most of the medical conditions associated with Down syndrome treatable and most people with Down syndrome now live healthy lives.
 
There are more than 400,000 individuals living with Down syndrome in the United States today. Each of these unique individuals touches the lives of family members, educators, employers, health care professionals, peers and others. This network of people who are forever changed for the better by Down syndrome numbers in the millions.
 
The Down Syndrome Association of Middle Tennessee envisions a world in which all people with Down syndrome have the opportunity to realize their life aspirations. To that end, we provide the following support to people in our community:
 
1. DSAMT provides up-to-date and accurate information on Down syndrome and disability issues through educational workshops, teacher trainings, public awareness campaigns, community events, and newsletters.
 
2. DSAMT holds a bi-annual statewide conference on Down syndrome.  We bring national experts on Down syndrome to Middle Tennessee to present cutting edge information to individuals with Down syndrome, their parents, caregivers, educators and disability professionals on a variety of issues including medical research, therapies, educational planning, estate planning, employment, and self-advocacy.
 
3. DSAMT provides enrichment activities for individuals with Down syndrome through summer camps, social groups and book club meetings.
 
4. When needed, DSAMT offers counseling support to parents in need of help when dealing with challenges that arise while raising a child with Down syndrome.  Led by a professional therapist, our group and individual counseling sessions are held in a safe, supportive and confidential environment.
 
5.  DSAMT provides support to families who have a member with Down syndrome through community events, social gatherings, and networking opportunities. Some programs include ongoing group meetings like D.A.D.S. (Dads Appreciating Down Syndrome), Community Outreach Groups, and quarterly Moms Night Out meetings. We also host family picnics, holiday parties, and the annual Buddy Walk, a celebration of individuals with Down syndrome held during National Down Syndrome Awareness Month, in October.
 
Needs
DSAMT's most pressing need is to maintain funding to support ongoing programs, and to increase funding in order to expand opportunities for direct service in the community.
 
Please visit our website for more information about how you can help.
Service Categories
Primary Organization Category Human Services / Developmentally Disabled Services/Centers
Areas of Service
Areas Served
TN - Davidson
TN - Williamson
TN - Rutherford
TN - Wilson
TN - Sumner
TN - Bedford
TN - Cannon
TN - Cheatham
TN - Clay
TN - Coffee
TN - Cumberland
TN - Davidson
TN - Dekalb
TN - Dickson
TN - Fentress
TN - Franklin
TN - Giles
TN - Hickman
TN - Houston
TN - Humphreys
TN - Lawrence
TN - Lewis
TN - Lincoln
TN - Macon
TN - Maury
TN - Montgomery
TN - Moore
TN - Overton
TN - Perry
TN - Pickett
TN - Putnam
TN - Robertson
TN - Rutherford
TN - Smith
TN - Stewart
TN - Sumner
TN - Trousdale
TN - Van Buren
TN - Warren
TN - Wayne
TN - White
TN - Williamson
TN - Wilson
While based in Davidson county, the Down Syndrome Association of Middle Tennessee serves all forty one counties that make up the Middle Tennessee region.
CEO Statement
The Down Syndrome Association of Middle Tennessee is unique. Our staff is committed to being available at any time to speak with educators, parents and families to discuss life issues and find resolutions. Our member families act as ambassadors in the community, supporting one another and advocating for their loved ones with Down syndrome.
 
Down syndrome is considered a disability by many, but at DSAMT we  focus on the strengths and abilities of all people. We know that people with Down syndrome are not defined by the number of chromosomes in their DNA; they are individuals, each with unique talents, interests, and capabilities.
 
DSAMT continues to further faith and confidence in our families and members by offering creative opportunities and programs for them to explore. We hope to reach all Middle Tennesseans through our advocacy efforts and that our community will continue to view people with Down syndrome as active and valuable citizens.
Programs
Description
DSAMT provides parents of a new babies born in area hospitals with general information packets containing information about raising a child with Down syndrome and the community resources that are available for support. On request, our Parent Support Network visits new families in the hospital or at home, to offer support and friendship to new parents.
 
DSAMT provides educational worksops, teacher trainings, and online resources. Our Down Syndrome Specialist program trains educators to serve as experts on educating students with Down syndrome in their districts. We also offer quarterly free parent workshops on all aspects of raising a child with Down syndrome including behavioral issues, estate planning, medical research, potty training, sexuality and much more. Our quarterly newsletters present up-to-date research and information on community events to more than 700 families in the region.
 
In 2011, DSAMT created the Smart Start program to help prepare parents of pre-school age children who are ready to enter kindergarten. The year-long program consists of quarterly workshops on topics including potty training, parent-school relationships, making friends at school, and more. It is our hope that with this program, children with Down syndrome will begin their school careers with their best foot forward, establishing a successful start the will continue for the rest of their lives.
Budget 56000
Category
Population Served Adults, ,
Description DSAMT provides support groups for new parents and those sharing the experience of Down syndrome. Group family counseling with a professional facilitator is also available as needed. DSAMT also provides regular support groups including D.A.D.S. (Dads Appreciating Down Syndrome), community outreach groups, and Moms Night Out meetings.
Budget 36000
Category
Population Served , ,
Description
DSAMT provides two weeks of Summer Arts Camps for kids, teens and adults with Down syndrome and other developmental or intellectual disabilities. Camp activities include visual arts, music, creative play and more. The day camp format allows for a safe and supportive environment in which campers can feel free to express themselves creatively.
 
In 2009, DSAMT received support from the Pujols Family Foundation in St. Louis to host the first ever Lose The Training Wheels bike camp in Tennessee.  The camp teaches individuals with Down syndrome and other disabilities how to ride a bike independently.  In its first year the bike camp worked with 25 children from DSAMT and other community organizations.  The 2010 camp worked with 20 children and more than 40 community volunteers. More than 75% of participants in the camp were able to learn to ride a two-wheeled bicycle, opening up a world of inclusive activity with their families, neighbors, siblings and peers. The camp will be offered again in Summer 2012.
 
Budget 11500
Category
Population Served , ,
Description DSAMT hosts a statewide conference every other year, bringing national and local experts on Down syndrome to Middle Tennessee to meet and share information with parents, educators and disability professionals. The conference focuses on topics such as medical research, education, legal issues, health, and long term supports. A self-advocates track for individuals with Down syndrome provides workshops on employment issues, healthy habits, self-determination and other important topics.
Budget 18000
Category
Population Served , ,
Description
DSAMT provides enrichment for individuals with Down syndrome through programs including Circle of Friends, a monthly social and recreational program for teens and adults with Down syndrome and Next Chapter Book Club, a weekly book club meeting.
 
For families, DSAMT hosts social gatherings including Family Picnics, Holiday Parties, Mom's Luncheons, and Grandparents events.
 
DSAMT provides advocacy through community awareness events including and the annual Buddy Walk, an all-day celebration of the abilities and accomplishments of individuals with Down syndrome. The day includes games and activities, a one-mile fun walk in honor of National Down Syndrome Awareness Month, and the presentation of the Mollie Gavigan award for service to the Down syndrome community.
 
In 2012 DSAMT will work with the Tennessee State Legislature to establish March 21 as Down Syndrome Awareness Day in Tennessee. The day will be celebrated with a "Down Syndrome Day on the Hill" in which voting age citizens with Down syndrome from across the state will visit their state representatives and senators at the capitol and meet the governor to advocate for themselves.
Budget 25000
Category
Population Served , ,
Board Chair
Board Chair Mr. Bob Brunner
Company Affiliation The Medicines Company
Term Jan 2013 to Dec 2014
Board Members
NameAffiliationStatus
Mrs. Melissa Beasley Community VolunteerVoting
Mr. Bob Brunner Community VolunteerVoting
Tonya Chavez Vanderbilt Children's HospitalVoting
Mark Copeland ChromaloxVoting
Cindy Gardner Voting
Ms. Kim Huddleston Community VolunteerVoting
Mrs. Michelle Kellum HCAVoting
Lydia Wingo Disability PathfinderVoting
Tony Youssefi Voting
Board Demographics - Ethnicity
African American/Black 1
Asian American/Pacific Islander 0
Caucasian 6
Hispanic/Latino 0
Native American/American Indian 0
Other 0
Board Demographics - Gender
Male 3
Female 6
Unspecified 0
Governance
Board Term Lengths 2
Board Term Limits 4
Board Meeting Attendance % 80%
Does the organization have written Board Selection Criteria? No
Does the organization have a written Conflict of Interest Policy? Yes
Percentage of Board Members making Monetary Contributions 100%
Percentage of Board Members making In-Kind Contributions 100%
Does the Board include Client Representation? Yes
Number of Full Board Meetings Annually 6
Standing Committees
Advisory Board
Board Development
Communications / Public Relations
Community Outreach / Community Relations
Development / Fund Raising
Education
Parents
Program
Special Events
Strategic Planning
Risk Management Provisions
Employee Benefits Liability
General Property Coverage & Professional Liability
Special Event Liability
Executive Director/CEO
Executive Director Mrs. Alecia Talbott
Term Start Jan 2013
Email alecia@dsamt.org
Staff
Full Time Staff 1
Part Time Staff 0
Volunteers 150
Contractors 3
Retention Rate 0%
Affiliations
AffiliationYear
Center for Nonprofit Management Excellence Network2000
Community Resource Center - Nashville2003
National Down Syndrome Society2000
National Down Syndrome Congress2002
Alliance on Disability Policy of Tennessee2007
Awards
Award/RecognitionOrganizationYear
Federal Home Loan Bank of Ohio Federal Home Loan Bank2005
Community Partner RecognitionVanderbilt Kennedy Center2005
National Conference RecognitionNational Down Syndrome Society2003
Nashville Habitat for HumanityNashville Habitat for Humanity2005
Community PartnerFrist Center for the Arts2012
 
 
Fiscal Year
Fiscal Year Start Jan 01 2013
Fiscal Year End Dec 31 2013
Projected Revenue $300,000.00
Projected Expenses $250,000.00
Endowment Spending Policy N/A
Endowment Spending Percentage (if selected) 0%
Detailed Financials
Expense Allocation
Fiscal Year201220112010
Program Expense$150,944$155,416$117,065
Administration Expense$14,990$23,445$71,875
Fundraising Expense$49,106$26,796$0
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses0.890.920.95
Program Expense/Total Expenses70%76%62%
Fundraising Expense/Contributed Revenue28%17%0%
Assets and Liabilities
Fiscal Year201220112010
Total Assets$275,810$312,472$184,657
Current Assets$164,827$188,865$184,657
Long-Term Liabilities$0$0$0
Current Liabilities$4,410$12,929$2,072
Total Net Assets$271,400$299,543$182,585
Short Term Solvency
Fiscal Year201220112010
Current Ratio: Current Assets/Current Liabilities37.3814.6189.12
Long Term Solvency
Fiscal Year201220112010
Long-Term Liabilities/Total Assets0%0%0%
Top Funding Sources
Fiscal Year201220112010
Top Funding Source & Dollar AmountFundraising Events $144,575Special Events $123,112Individual Contributions & Grants $171,248
Second Highest Funding Source & Dollar AmountFoundation and Corporate Contributions $25,750Contributions, Gifts and Grants $34,153Earned/Program Service Revenue $7,634
Third Highest Funding Source & Dollar AmountProgram Service Revenue $14,990Program Service Revenue $32,246Interest/Investment Income $251
Capital Campaign
Is the organization currently conducting a Capital Campaign for an endowment or the purchase of a major asset? No
Capital Campaign Goal $0.00
Capital Campaign Anticipated in Next 5 Years? Yes
State Charitable Solicitations Permit
TN Charitable Solicitations Registration Yes - Expires Dec 2013
GivingMatters.com Financial Comments
Financial figures taken from the 990.
990 prepared by Joe D. Collum, Jr., CPA.
Comments provided by Laurel Fisher 7/17/13.
Nonprofit Down Syndrome Association of Middle Tennessee
Address 111 North Wilson Boulevard
Nashville, TN 37205
Primary Phone (615) 386-9002
Contact Email alecia@dsamt.org
CEO/Executive Director Mrs. Alecia Talbott
Board Chair Mr. Bob Brunner
Board Chair Company Affiliation The Medicines Company
Year of Incorporation 1995

Related Information

Public Health

The dramatic achievements of public health in the 20th century have improved our quality of life in a myriad of ways, including an increase in life expectancy, worldwide reduction of infant and child mortality rates, and the elimination or reduction of many communicable diseases. In Middle Tennessee, improvements in preventive medicine and advanced medical technology have resulted in increased life expectancy and improved health for many residents. However, significant health disparities exist in our region, resulting in poor health status often related to economic status, race, and/or gender.