Mission Statement
The mission of United Cerebral Palsy of Middle Tennessee is to advance the independence, productivity, and full citizenship of individuals with disabilities through hands on services and to provide support to family members and caregivers. Our vision is to achieve a fully inclusive community, where people with disabilities have access and opportunity to achieve their fullest potential; a community where they and their families realize the promise of integration, self-direction, and quality of life choices.
Leadership
CEO/Executive Director
Ms. Deana Claiborne
Board Chair
Mr. Jim Catalano
Board Chair Company Affiliation
Frost Brown Todd, LLC Attorneys
History & Background
Year of Incorporation
1985
Organization's type of tax exempt status
501-C3
Financial Summary
Graph: Expense Breakdown Graph - All Years
Projected Expenses
$1,432,882.00
Projected Annual Revenue
$1,432,882.00 (2018)
Statements
Mission
The mission of United Cerebral Palsy of Middle Tennessee is to advance the independence, productivity, and full citizenship of individuals with disabilities through hands on services and to provide support to family members and caregivers. Our vision is to achieve a fully inclusive community, where people with disabilities have access and opportunity to achieve their fullest potential; a community where they and their families realize the promise of integration, self-direction, and quality of life choices.
Background
United Cerebral Palsy of Middle Tennessee (UCP) was incorporated in 1985 by concerned parents of children with disabilities, adults with disabilities, and volunteers. Our guiding vision is to achieve a fully inclusive community, where people with disabilities have access and opportunity to achieve their fullest potential; a community where they and their families realize the promise of integration, self-direction, and quality of life choices. UCP serves persons of all ages with all forms of disabilities, with focus on disabilities that primarily affect mobility and developmental progress.
In recent years, UCP has dedicated our resources to the state’s under-served populations, i.e., persons with significant disabilities who are not served by the state’s system of developmental disability services, and persons who do not qualify for substantial governmental supports. These include children and adults with developmental disabilities who are disqualified from the Department of Intellectual and Developmental Disabilities Medicaid Waiver Services because of diagnosis or who are on the extensive waiting lists for services in Tennessee's Medicaid Waiver Programs. The agency also serves a large population of individuals who have acquired disabilities as a result of conditions related to aging.
Impact
UCP has a very lean and efficient operation, with only 5 full time staff members and hundreds of volunteers. The services we have developed allow us to serve a substantial number of people at a low cost. These programs are sustainable, and they are to a certain extent scalable within the context of available funding. UCP programs provide targeted, essential relief that makes a measurable difference in the safety and independence of both the individual with a disability as well as their home-based caregivers. United Cerebral Palsy currently serves over 2500 people annually through the following initiatives (Each of these programs has waiting lists for services):
Each year, UCP provides over $1Million worth of durable medical equipment to persons with severe disabilities who could not otherwise acquire this equipment.
Our Rutherford County Family Support Program serves over 240 individuals annually, with focus on families with children who have developmental disabilities and limited supports
UCP, our volunteers and partner programs across the state have constructed over 2500 wheelchair ramps on to the homes of low income individuals with severe disabilities
Our sports and recreation programs serve approximately 50 children and young adults annually
UCP was recognized by the Tennessee State Legislature for our advocacy efforts which resulted in the creation of the Tennessee Department of Intellectual and Developmental Disabilities
UCP does not represent that our programs meet all of the needs of the populations we serve; their needs are immense. UCP will continue to advocate for sound public programs that provide equity in services to all disability populations. Until that time, our primary goals are:
to continue to provide low-cost targeted services to relieve extraordinary needs
to address waiting list needs in our key programs of service
to expand our volunteer outreach, training and services,
to develop non-restricted funds to meet ongoing operational needs
Needs
Funding is needed to provided direct services to persons with severe developmental disabilities other than intellectual disabilities. These include disabilities such as cerebral palsy, autism, and other disabilities acquired at birth or during childhood.
Due to a gap in Tennessee's service structure, these individuals are not served by either the Department of Mental Health and Developmental Disabilities or by the Department of Intellectual and Developmental Disabilities.
Other ways to donate, support, or volunteer
Checks can be sent to: UCP of Middle Tennessee, 1200 9th Avenue North, Suite 110, Nashville TN 37208. You can also give real estate, appreciated stocks, or in-kind gifts such as durable medical equipment (wheelchairs, tub transfer benches, etc.), hygiene supplies, and other essentials that will be distributed to people in need. If you would like to give any of these items, or if you want to contribute your time, contact our Executive Director Deana Claiborne deana_claiborne@ucpnashville.org (615-242-4091) about ways you can become directly involved in wheelchair ramp building, special events and other UCP activities.
Service Categories
Primary Organization Category
Human Services / Developmentally Disabled Services/Centers
Secondary Organization Category
Housing, Shelter / Home Improvement/Repairs
Tertiary Organization Category
Recreation & Sports / Amateur Sports
Areas of Service
While our primary focus is Middle Tennessee, UCP of Middle Tennessee provides services to individuals with disabilities in approximately 80% of Tennessee counties in any given year.
CEO Statement
United Cerebral Palsy of Middle Tennessee is unique among agencies serving individuals with developmental and acquired physical disabilities in Tennessee. While most agencies that primarily focus on developmental disabilities services provide programs for populations for which waiver contract funding is available through the state Department of Intellectual and Developmental Disabilities, UCP has chosen to focus on the needs of substantially unaddressed populations. Our agency relies on an array of private funding initiatives for basic services to our families. Many people with significant disabilities do not qualify for long term care supports under TennCare and they cannot acquire private insurance adequate to meet their significant long term care needs. The individuals our agency serves are people with documented and verifiable needs who simply have nowhere else to turn. Our resources are meager, but our volunteers and families prove every day that much can be done when limited resources are used with innovation and care.
Board Chair
Board Chair
Mr. Jim Catalano
Company Affiliation
Frost Brown Todd, LLC Attorneys
Term
July 2017 to June 2019
Email
jcatalano@fbtlaw.com
Board Demographics - Ethnicity
African American/Black
0
Asian American/Pacific Islander
0
Caucasian
11
Hispanic/Latino
0
Native American/American Indian
0
Other
3 Individual with disability/Family member
Board Demographics - Gender
Male
8
Female
3
Unspecified
0
Governance
Board Term Lengths
3
Board Term Limits
2
Board Meeting Attendance %
78%
Does the organization have written Board Selection Criteria?
Yes
Does the organization have a written Conflict of Interest Policy?
Yes
Percentage of Board Members making Monetary Contributions
100%
Percentage of Board Members making In-Kind Contributions
100%
Does the Board include Client Representation?
Yes
Number of Full Board Meetings Annually
6
Risk Management Provisions
Executive Director/CEO
Executive Director
Ms. Deana Claiborne
Term Start
May 1993
Email
Deana_Claiborne@ucpnashville.org
Experience
Deana Claiborne has held the position of Executive Director of United Cerebral Palsy of Middle Tennessee since 1993. Claiborne holds a Bachelor's degree in Communication and a Master of Education Degree in Psychological Counseling. Claiborne formerly served as President the League of Women Voters Nashville and President of the State of Tennessee LWV Board. In this role, she was instrumental in the coordination of numerous political debates and forums. An experienced video producer, Claiborne has also produced educational programming on issues affecting individuals with disabilities. Among these include investigative reports on Inclusive Education, Transportation, Fair Housing, Adoption of Special Needs Children, and the Supreme Court's Olmstead Decision. In the 1980's, Claiborne was instrumental in the development of the state's child protection legislation and the subsequent establishment of non-profit child abuse prevention agencies across the state of Tennessee. During this period, she served as the chair of the state Standards Committee for Licensure of Tennessee Child Abuse Prevention Agencies. She also served as Chair of the Victims of Crime Act Advisory Board to the Tennessee Department of Human Services under three commissioners, assisting in the establishment of domestic violence shelters throughout Tennessee. Claiborne is a strong advocate for the rights of individuals with disabilities and a proponent of long-term care initiatives that positively impact the economic condition of women in the role of caregivers. Current interests include accessible transportation, affordable housing, voting rights, and community based living supports. She served on the Mayor's Advisory Committee on Special Education, the Tennessee Developmental Disabilities Planning and Policy Council, and the Tennessee Child Care Resource Centers Board. She also served on the Board of Directors of CABLE (professional networking organization for women), and her community homeowner's association. Claiborne Chaired the 2005 Nashville ATHENA Awards, an annual event recognizing the professional accomplishments of women. Claiborne is now a member of the national UCP Federal Policy Steering Committee.
Staff
Full Time Staff
4
Part Time Staff
1
Volunteers
2689
Contractors
1
Retention Rate
100%
Plans & Policies
Does the organization have a documented Fundraising Plan?
Yes
Does the organization have an approved Strategic Plan?
Yes
Number of years Strategic Plan Considers
1
When was Strategic Plan adopted?
Aug 2008
In case of a change in leadership, is a Management Succession plan in place?
Under Development
Does the organization have a Policies and Procedures Plan?
No
Does the organization have a Nondiscrimination Policy?
Yes
Senior Staff
Title
Director of Volunteer Services & Systems and Procedures
Experience/Biography
Curiosity Design (1994-2003); First American National Bank (1992-1995) State of Tennessee Department of Human Services 1977 - 1985)B.S. in Elementary Education (Austin Peay State University); volunteer for Ronald McDonald House, March of Dimes, Salvation Army,Bethesda Center (Ashland City) and Boy Scouts of America.
Title
Director of Home Access
Experience/Biography
Granite Falls, Nashville, TN
B.S. in Psychology Trevecca University
Youth basketball coach
Fiscal Year
Fiscal Year Start
July 01 2017
Fiscal Year End
June 30 2018
Projected Revenue
$1,432,882.00
Projected Expenses
$1,432,882.00
Endowment Spending Policy
N/A
Endowment Spending Percentage (if selected)
0%
Detailed Financials
Short Term Solvency
Capital Campaign
Is the organization currently conducting a Capital Campaign for an endowment or the purchase of a major asset?
No
Capital Campaign Goal
$0.00
Capital Campaign Anticipated in Next 5 Years?
No
State Charitable Solicitations Permit
TN Charitable Solicitations Registration
Yes - Expires Dec 2018
Organizational Budgets and Other Documents