American Parkinson Disease Association Middle TN Chapter
2300 Patterson Street
Nashville TN 37203
Vince Gill performs for Parkinson's
Brent Peterson presents gift to Vince
Celebrities raise money for parkinson's
Mission Statement
The mission of the APDA Middle Tennessee Chapter is to provide the highest quality programs and services to people affected by Parkinson's disease. We do this through compassionate support, meaningful education, and life-enhancing services.
Leadership
CEO/Executive Director Ms. Caryn Crenshaw RN
Board Chair Wendy Nadeau
Board Chair Company Affiliation
History & Background
Year of Incorporation 1993
Organization's type of tax exempt status 501-C3
Financial Summary
 
 
Projected Expenses $24,019.00
Projected Annual Revenue $26,500.00 (2014)
Statements
Mission The mission of the APDA Middle Tennessee Chapter is to provide the highest quality programs and services to people affected by Parkinson's disease. We do this through compassionate support, meaningful education, and life-enhancing services.
Background Parkinson's disease develops when brain functions controlling balance, movement, walking and speech are hindered by the death of specific brain cells resulting in the decreased production of a chemical substance - dopamine - that plays a very important role in the transmission of impulses in the brain. Symptoms of the disease progress from tiredness and weakness in early stages to near-total loss of movement and control in later stages. The symptoms can be treated in most cases with drugs, but the cause and cure of this disease has yet to be found. There is hope...the American Parkinson Disease Association, Inc., works tirelessly for Parkinson's patients and their families through medical research, patient and family support and education. The American Parkinson Disease Association (APDA) was founded in 1961 to "ease the burden and find a cure" for Parkinson's disease. The APDA is, by far, the largest grassroots organization in the United States dedicated to fighting Parkinson's disease. Headquartered in New York, the organization focuses its energies on research, patient support, education and raising public awareness of the disease. The APDA has financially supported research leading to every major breakthrough in the knowledge and treatment of Parkinson's disease.  Each year the APDA scientific advisory board reviews grant requests and submits recommendations for funding researchers whose work shows promise of making scientific breakthroughs or finding improved treatments for Parkinson's disease. The APDA national office also coordinates the efforts of 65 chapters, 57 information & referral centers and 250 affiliated support groups across the nation. The Middle Tennessee Chapter was established in 1993 in conjunction with the establishment of an Information & Referral Center at TriStar Centennial Medical Center.
Impact
1)  Partnered with Fifty Forward Knowles to provide twice weekly exercise program (PEP)
2)  Established pilot project:  Dancing with Parkinson's with goal of continuing project with positive outcome measures obtained
3)  Goal to increase the number of board members leading the Chapter
4)  Goal to offer a large educational conference in the fall of 2014
5)  Continued partnership with the TN Respite Coalition to provide respite for Parkinson's caregiver 
Needs
1) Board members  2)  Raising awareness of PD and the association's outreach and services  3) Increased revenue to expand support services  4)  Increased funding of PD research  5)  Improving grant application process
Other ways to donate, support, or volunteer
Donations may be made by mailing a check to the addresses listed above.  Anyone interested in volunteering should contact Caryn Crenshaw, 615-342-4635.
Service Categories
Primary Organization Category Diseases Disorders & Medical Disciplines / Nerve Muscle & Bone Diseases
Areas of Service
Areas Served
TN - Cheatham
TN - Davidson
TN - Dickson
TN - Hickman
TN - Montgomery
TN - Robertson
TN - Rutherford
TN - Sumner
TN - Warren
TN - Williamson
TN - Wilson
While we send materials statewide, our emphasis is service in the Middle Tennessee area.
Board Chair Statement  

I would like to take this opportunity to introduce myself as the President for the Middle Tennessee Chapter of the American Parkinson Disease Association. I became involved with the fight to ease the burden and find a cure in 1994 when my beloved Grandfather was diagnosed with Parkinson's Disease.   After moving from Michigan to attend Middle Tennessee State University, I became involved with the chapter in 2001 as I watched the progression of the disease affect my Grandfather and the family members who provided for his care. Years after connecting with the MT chapter as a volunteer, I was honored to be asked to join the board of directors in 2006. I have served on the board since, and it is my privilege to now serve as President.  

 
I look forward to continuing my service to the chapter and all those we touch across Middle Tennessee. We are a close-knit community and I hope you will feel free to contact me if I can be of any assistance to you or your families.   

 

This year, we will continue to look for opportunities to further serve this region in easing the burden of PD while maintaining our successful programs and support groups. We invite you to visit our newly renovated website at www.mtparkinsons.org for details on upcoming events, important program information and the latest news. When visiting the site, we ask that you provide us with an email address as we work diligently to take advantage of convenient ways to communicate information regarding chapter activities. 

 

I also ask that you consider the resources it takes to continue to provide vital wellness and informational programs, support research and offer support groups for those with PD and their caregivers. Even a modest donation will help maintain these programs and contribute to the research that allows us to fulfill our mission to ease the burden and find a cure for those with Parkinson's Disease. No gift is too small and we are grateful for your generosity.

 

By the way, our chapter is celebrating its 20th year of serving our PD community. This would not have been possible without the hard work of many volunteers over the years as well as the financial support from our donors. We hope to continue our strong tradition of providing support and assistance to those who need our service until a cure is found.

 

On behalf of the board of directors, I extend our best wishes for your health and happiness. 

Thank you for your involvement and support of the Middle Tennessee Chapter of the APDA.

 

Sincerely,

 

Wendy L. Nadeau, M.S.

President

Middle TN Chapter

American Parkinson Disease Association


CEO Statement Did you know that more people suffer from Parkinson’s disease than multiple sclerosis, muscular dystrophy and Lou Gehrig’s disease combined? That the disease affects not only the elderly but even people in their 30’s and 40’s…and this figure is growing at an alarming rate? Parkinson’s disease is a devastating neurological disorder. It shatters the dignity of its victims and cripples their bodies until it slowly, cruelly, destroys their lives. Parkinson’s disease affects approximately 1.5 million Americans.  However, not all of these cases have been diagnosed. One of the primary goals of the American Parkinson Disease Association - Middle Tennessee Chapter is to generate awareness of the disease and its symptoms so that more people and their families can be helped. The APDA conducts this outreach effort through an Information & Referral Center housed at Centennial Medical Center. The funds raised by the Middle Tennessee Chapter are used to help continue the mission of the APDA right here in Middle Tennessee. We strive – through grants, fundraising events and other initiatives – to raise money for programs that directly impact Parkinson’s sufferers and their caregivers. These programs include: * Support groups (we currently offer 12 throughout Middle TN and Southern KY) * Exercise classes * Quarterly newsletters * Symposia on topics of interest * Other programs identified in a biennial survey of our membership. In fiscal 2011-2012, we served over 1,000 Parkinson’s patients and caregivers. The APDA - Middle Tennessee Chapter supports national research efforts as well. Most of our board members have been touched by Parkinson’s disease in their own lives – which makes for a level of commitment not often encountered at the board level.
Programs
Description 15 groups statewide offering education, support, and peer to peer sharing for patients, caregivers and family.
Budget 2500
Category Diseases, Disorders & Medical Disciplines Parkinson Disease
Population Served Aging/Elderly/Senior Citizens, Adults,
Short Term Success Support group leaders will report consistent attendance and positive feedback from members.
Long term Success The association will continue to maintain current network of support groups and add groups in geographical area which are not currently served.
Program Success Monitored By Program coordinator makes contact with leaders to plan agendas and speakers for meetings, to provide educational materials and maintain active attendance rosters.  Leaders self report regarding attendance and speaker receptance.
Examples of Program Success Two new support groups were added in the state during 2008.
Description Free class held twice weekly to increase strength & range of motion to prevent progression of disease.
Budget 5200
Category Diseases, Disorders & Medical Disciplines Parkinson Disease
Population Served Aging/Elderly/Senior Citizens, Adults,
Short Term Success At least 10 individuals with PD will participate in each class.
Long term Success Physicans will suggest to their PD patients to enroll in this program.
Program Success Monitored By Success is monitered by attendance and satisfaction surveys.
Examples of Program Success

One couple (patient and caregiver) who attend have been doing so for 10 years.

Description A registered nurse is available to help families explore interventions for maintaining optimal health and wellness. 
Budget this service is currently supported by the APDA national budget
Category Diseases, Disorders & Medical Disciplines Parkinson Disease
Population Served Aging/Elderly/Senior Citizens, Adults,
Short Term Success Utilization of this service will increase by 5% each year.
Long term Success People dealing with PD will utilize this service.
Program Success Monitored By Utilization.
Examples of Program Success

Over 50 sessions were held in 2208.

Description Referral to physicians, support organizations and community resources; maintenance of extensive multi-media resource library on Parkinson’s disease.
Budget currently funded by the APDA national budget
Category Diseases, Disorders & Medical Disciplines Parkinson Disease
Population Served General Public/Unspecified, Aging/Elderly/Senior Citizens, General Public/Unspecified
Short Term Success

Contacts will increase by 5% each year.

Long term Success Anyone requiring information about PD will contact our association.
Program Success Monitored By Number of conacts made.
Examples of Program Success Patients, caregivers and students typically utilize this service.  Over 500 educational materials and referrals were made available in 2008.
Description
Series of educational programs presented by local Movement Disorder Specialists.
Budget 12,500
Category
Population Served , Adults,
Short Term Success Those attending will gain greater knowledge.  Falls will decrease resulting in fewer injuries; caregivers will report a better understanding of their role in the management of PD; young onset individuals will establish a network to solidify their support systems.
Long term Success These conferences will continue to serve the needs of those attending and will have greater attendance each year.
Program Success Monitored By

Post evalutions are used to determine success.

Examples of Program Success

The caregiver conference held in 2008 had a 100% positive feedback survey.

Description The association partners with the Tennessee Respite Coalition to provide financial assistance to familiy caregivers.
Budget 24,000 if not funded by current grant from Baptist Healing Trust
Category Diseases, Disorders & Medical Disciplines Parkinson Disease
Population Served Aging/Elderly/Senior Citizens, Adults,
Short Term Success

Program will serve 20 caregivers.

Long term Success The program will continue to serve caregivers who are without means to allow themselves a time out from caregiving.
Program Success Monitored By Utilization.
Examples of Program Success

One caregiver recently stated that she would have to quit working without the support of this program and that her income allows them to purchase the medications that her husband requires.

Description This service allows those newly diagnosed with PD to meet with a registered nurse to gain a better understanding of their disease and local resources that are available to help.
Budget currently covered by the APDA national budget
Category Diseases, Disorders & Medical Disciplines Parkinson Disease
Population Served Aging/Elderly/Senior Citizens, Adults,
Short Term Success At least 20 newly diagnosed Parkinson's patients will contact the association each year.
Long term Success Physicans will recommend to those newly diagnosed that they contact our association.
Program Success Monitored By Contacts.
Examples of Program Success Recently diagnosed woman of 60 contacted office in November to seek educational materials and schedule counseling session.
Description A three month trial service of an emergency response monitoring system provided without charge to those diagnosed with PD.
Budget 1100
Category Diseases, Disorders & Medical Disciplines Parkinson Disease
Population Served Aging/Elderly/Senior Citizens, Adults,
Short Term Success To have more wheelchairs and walkers donated.
Long term Success Program will continue to receive donations with ample supply for those in need.
Program Success Monitored By Number and diversification of donations.
Examples of Program Success Have placed 4 walkers, numerous canes, one wheelchair, one shower chair in the past 6 months.
CEO Comments
The American Parkinson Disease Association is unique in that it provides funding for an outreach center in most larger cities in  the US.  In TN, we are fortunate to have a center in Nashville that are staffed and funded by the national office.  The center's registered nurse works in partnership with the local chapter to provide programs and services.  This allows the chapter to fund programs and services for base service without having to pay for additional salay or administration.  Our need is to have physicians recommend that those dealing with PD contact the organization.  Our core services and programs are disease based and geared toward the needs of those with PD and their families. These services are of high quality and meet the needs of the Parkinson community. 
Board Chair
Board Chair Wendy Nadeau
Term Sept 2011 to Aug 2017
Email wendy.nadeau@comcast.net
Board Members
NameAffiliationStatus
Alex Cohn Price WaterhouseVoting
Mr. Steven Cronin Community VolunteerVoting
Beth Horrell Community VolunteerVoting
Ms. Wendy Nadeau Cumberland UniversityVoting
Matt Ramsey PhDVanderbilt UniversityVoting
Dr. Ronald Wilson Brentwood Neurology, PLCVoting
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 6
Hispanic/Latino 0
Native American/American Indian 0
Other 0
Board Demographics - Gender
Male 4
Female 2
Unspecified 0
Governance
Board Term Lengths 3
Board Term Limits 2
Board Meeting Attendance % 90%
Does the organization have written Board Selection Criteria? Yes
Does the organization have a written Conflict of Interest Policy? Yes
Percentage of Board Members making Monetary Contributions 100%
Percentage of Board Members making In-Kind Contributions 50%
Does the Board include Client Representation? Yes
Number of Full Board Meetings Annually 4
Standing Committees
Board Development
Development / Fund Raising
Executive
Management
Program
Risk Management Provisions
Commercial General Liability
Directors & Officers Policy
Special Event Liability
Executive Director/CEO
Executive Director Ms. Caryn Crenshaw RN
Term Start June 2013
Email APDAinTN@aol.com
Experience
Have served as the Nurse Coordinator and Program Direction for the MT/APDA Chapter since 1994.
Staff
Full Time Staff 0
Part Time Staff 1
Volunteers 10
Contractors 0
Retention Rate 100%
Plans & Policies
Does the organization have a documented Fundraising Plan? No
Does the organization have an approved Strategic Plan? Yes
Number of years Strategic Plan Considers 5
When was Strategic Plan adopted? Aug 2008
In case of a change in leadership, is a Management Succession plan in place? No
Does the organization have a Policies and Procedures Plan? Yes
Does the organization have a Nondiscrimination Policy? Yes
Affiliations
AffiliationYear
Affiliate/Chapter of National Organization (i.e. Girl Scouts of the USA, American Red Cross, etc.) - Affiliate/chapter1993
 
 
Fiscal Year
Fiscal Year Start Sept 01 2013
Fiscal Year End Aug 31 2014
Projected Revenue $26,500.00
Projected Expenses $24,019.00
Endowment Spending Policy N/A
Endowment Spending Percentage (if selected) 0%
Detailed Financials
Revenue and ExpensesHelpFinancial data for prior years is entered by foundation staff based on the documents submitted by nonprofit organizations.Foundation staff members enter this information to assure consistency in the presentation of financial data across all organizations.
Fiscal Year201320122011
Total Revenue$8,210,799$7,833,848$10,844,181
Total Expenses$8,438,527$8,514,673$7,959,866
Revenue Less Expenses($227,728)($680,825)$2,884,315
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201320122011
Foundation and
Corporation Contributions
$0$0$0
Government Contributions$0$0$0
Federal$0$0$0
State$0$0$0
Local$0$0$0
Unspecified$0$0$0
Individual Contributions$6,471,601$6,320,143$9,872,777
$149,645$108,974$111,729
$29,213$26,679$26,156
Investment Income, Net of Losses$137,909$37,177$122,926
Membership Dues$34,034$32,719$42,304
Special Events($630,733)$1,273,182$621,584
Revenue In-Kind$0$25,000$0
Other$20,464$9,974$46,705
Expense Allocation
Fiscal Year201320122011
Program Expense$6,365,554$6,304,528$5,885,642
Administration Expense$864,546$1,013,773$924,086
Fundraising Expense$1,208,427$1,196,372$1,150,138
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses0.970.921.36
Program Expense/Total Expenses75%74%74%
Fundraising Expense/Contributed Revenue20%16%11%
Assets and Liabilities
Fiscal Year201320122011
Total Assets$9,749,521$9,280,021$10,058,121
Current Assets$5,727,761$5,241,288$6,044,150
Long-Term Liabilities$84,249$84,068$0
Current Liabilities$2,913,063$2,245,823$2,431,205
Total Net Assets$6,752,209$6,950,130$7,538,925
Short Term Solvency
Fiscal Year201320122011
Current Ratio: Current Assets/Current Liabilities1.972.332.49
Long Term Solvency
Fiscal Year201320122011
Long-Term Liabilities/Total Assets1%1%0%
Top Funding Sources
Fiscal Year201320122011
Top Funding Source & Dollar AmountContributions, Gifts & Grants $6,471,601Contributions, Gifts & Grants $6,320,143Contributions, Gifts and Grants $9,872,777
Second Highest Funding Source & Dollar AmountIndirect Public Support & Federated Campaigns $149,645Special Events $1,273,182Fundraising $1,159,861
Third Highest Funding Source & Dollar AmountInvestments & Sales of Securities $137,909Indirect Public Support (Federated Campaigns) $108,974Investment Income $122,926
IRS Letter of Exemption
Capital Campaign
Is the organization currently conducting a Capital Campaign for an endowment or the purchase of a major asset? No
Capital Campaign Goal $0.00
Capital Campaign Anticipated in Next 5 Years? No
State Charitable Solicitations Permit
TN Charitable Solicitations Registration Yes - Expires Feb 2015
Solicitations Permit
APDA TN Permit
Organization Comments APDA chapters raise money each fiscal year -- through grants, donations, fundraising events -- to fund administrative and program services at the local level. At the end of the fiscal year, August 31, 50% of remaining funds are sent to national, where they are pooled with the funds from other chapters and used to fund administration and research initiatives at the national level.
GivingMatters.com Financial Comments
Financial figures are taken from the NATIONAL 990, as no local figures were available for multiple consecutive years. Foundation and corporate contributions are included in Individual Contributions sum, as amounts are not separated in 990. 990 completed by Potter & LaMarca LLP.
 
NOTE: Middle Tennessee-specific numbers have been provided for 2012 and 2013, and are available for view in the downloadable 990 section above.
 
Comment provided by Beth Groves 7/10/14
Nonprofit American Parkinson Disease Association Middle TN Chapter
Address 2300 Patterson Street
Nashville, TN 37203
Primary Phone (615) 342-4635
Contact Email APDAinTN@aol.com
CEO/Executive Director Ms. Caryn Crenshaw RN
Board Chair Wendy Nadeau
Year of Incorporation 1993

Related Information

Public Health

The dramatic achievements of public health in the 20th century have improved our quality of life in a myriad of ways, including an increase in life expectancy, worldwide reduction of infant and child mortality rates, and the elimination or reduction of many communicable diseases. In Middle Tennessee, improvements in preventive medicine and advanced medical technology have resulted in increased life expectancy and improved health for many residents. However, significant health disparities exist in our region, resulting in poor health status often related to economic status, race, and/or gender.